FAST Features (Lived experience stories)

Explore the FAST Lived Experience video playlist, featuring personal stories, experiences and insights from individuals and families affected by Angelman syndrome. Hear firsthand perspectives on everyday life, challenges and achievements within the Angelman syndrome community.

FAST UK Youtube Library

Want to explore more? Visit our YouTube channel to watch conference presentations, expert discussions, research updates and informative videos about Angelman syndrome.

Angelman Syndrome Community Webinar

This community webinar, hosted by FAST and the Angelman Syndrome Association (ASA), features representatives from Ionis and Ultragenyx discussing Phase 3 clinical trials in Europe and the UK.

What Parents Need to Know About Ongoing and Upcoming Clinical Trials

As research into Angelman syndrome continues to move forward, many families are beginning to think about clinical trials and what taking part might mean for them.

We know this can feel exciting, but also a little overwhelming.

The aim of this page is to bring together trusted information that will help you better understand the clinical trial process, the language you may hear, and the questions you might want to ask. We hope these resources will help you feel informed and prepared, whatever stage of the journey you’re on.

Library & Resources > Interviews

FAST Features (Lived experience stories)

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