FAST Global Search & Rescue Initiative Joins the Global Angelman Syndrome Registry
03/03/2025
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A Unified Effort to Connect Families, Accelerate Research, and Find a Cure for Angelman Syndrome
FAST Global Search & Rescue Initiative: Finding Every Individual Globally Living with Angelman Syndrome and Why It Matters
The FAST Global Search & Rescue Initiative has a vital mission: to identify every individual worldwide living with Angelman Syndrome (AS). By connecting families and individuals with AS to resources, clinical trials, and the latest research, the initiative plays a critical role in advancing potential treatments and a cure.
We are excited to announce that the Search & Rescue program is now fully integrated into the Global Angelman Syndrome Registry. This integration enhances data security, simplifies participation for families, and strengthens our global research efforts.
As part of the integration, there will be a more comprehensive consent process, focusing on clinical trial contact and the inclusion of data in research initiatives.
Integrating the Search & Rescue program with the Global Angelman Syndrome Registry creates a unified, powerful resource for connecting families with clinical trials and the latest research. By participating, families help accelerate the path to effective treatments and, ultimately, a cure.
For more information or to join the Search & Rescue initiative, please visit the Global Angelman Syndrome Registry.
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We found solace and purpose through FAST. Their relentless pursuit of a cure resonated with us, and we started our fundraising journey with them.
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