Narrative Supports: An Angelman Community Webinar

Join Kate Ahern in a webinar exploring the power of narrative supports for individuals with Angelman Syndrome. Learn how to create empowering social stories and implement them effectively.

Getting started with AAC – Motivate, Model, and Move Out of the Way

Explore the basics of augmentative and alternative communication (AAC) with Angelman Academy. Learn about robust AAC systems, vocabulary arrangement, and effective implementation strategies for individuals with Angelman Syndrome.

Q&A about the ACES-ICT – Inclusion program

Explore the ACES-ICT inclusion program at PS15 with teachers Rachel Marks and Catherine Lipkin. Learn about the power of inclusion in education and how it benefits all students.

Gaining language:What to Consider & how to start

Explore the journey of gaining language through AAC with Speech-Language Pathologist, Caroline Woeber. Learn about AAC, its evaluation process, and the role of communication partners.

2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK

Join our webinar for updates on the Natural History Study and clinical trials for Angelman syndrome in the UK. Learn about ongoing research, eligibility criteria, and community involvement.

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Anjali Sadhwali

Join Dr. Terry Jo Bichell and Dr. Anjali Sadhwani as they discuss Angelman syndrome, its natural history study, and the importance of adaptive functioning. Learn about the latest research and treatments.

Prof Servais on the GTX-102 Phase 1/2 clinical trial in the UK

Explore Prof. Servais’ insights on the GTX-102 Phase 1/2 clinical trial in the UK. Learn about the drug’s potential, previous studies, and future prospects in treating neuromuscular diseases.

FAST UK Youtube Library

Want to explore more? Visit our YouTube channel to watch conference presentations, expert discussions, research updates and informative videos about Angelman syndrome.

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Yong-Hui Jiang

Explore Dr. Yong-Hui Jiang’s groundbreaking work on Angelman Syndrome, from identifying the UBE3A gene to creating brain organoids for disease study and treatment testing. Discover hope for future advancements.

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Jim Wilson

Explore the latest Angelman Syndrome research with Dr. Jim Wilson, discussing gene therapy, antisense oligonucleotides, and genome editing. Discover the future of treatments and collaborations in rare disease research.

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Ralf Schmid

Join Dr. Terry Jo Bichell as she interviews Dr. Ralf Schmid on his groundbreaking work in gene therapy for Angelman Syndrome. Discover the potential of this innovative treatment in improving lives.

What Parents Need to Know About Ongoing and Upcoming Clinical Trials

As research into Angelman syndrome continues to move forward, many families are beginning to think about clinical trials and what taking part might mean for them. We know this can feel exciting, but also a little overwhelming. The aim of this page is to bring together trusted information that will help you better understand the clinical trial process, the language you may hear, and the questions you might want to ask. We hope these resources will help you feel informed and prepared, whatever stage of the journey you’re on.

Videos Interviews & Webinars