Announcing the Winner of Our 2024 Community Member Award
We are thrilled to reveal the winner of our Community Member Award, an initiative recognizing individuals who’ve made a significant impact within the Angelman syndrome community in the UK.
A Working Mum and Carer, one year in…
My life took an unexpected turn when my 4-year-old son, Ivor, was diagnosed with Angelman Syndrome just after his third birthday.
Fundraising Spotlight: Cici
We were amazed by how brilliant a recent fundraising event was organised as part of the CAN Campaign by Ceci’s parents. Ceci’s mum Heather is sharing their experience in today’s Fundraising Spotlight.
Parent Blog: Our son, Hudson, is our real life Angel! …by Charlene Cooper
Our son, Hudson, is our real life Angel! Our blue eyed boy was born on 1st December 2020, eager to meet us as he came 3 weeks early. Hudson’s big sisters, Amelia and Madison were delighted with their new role as…
Fundraising Spotlight: Bella
We are always impressed by the energy and passion our fundraisers are demonstrating in the events they organise. Today, we are happy to share a story behind Bella’s parents, Rachel and Rich, fundraising in the Fundraising Spotlight.
Supporting FAST UK and raising awareness of Angelman Syndrome – our journey so far… by Sarah Washbrook
So where did it all begin? I knew very early on that something was unique about Ivor. I waved my hands, but people said I was fussing; he’s just a boy. I suppose this is when the grieving started for me, the fear, the worries.
International Angelman Day @ Alton Towers
February 15th 2023, marks the 10 year anniversary of International Angelman Day, It is also the tenth year that an Angelman group, created by an Angelman mum, Linda Holmes, took place at their usual venue Alton Towers.
Reflections on FAST Science Summit & Gala 2021 by Irina Karaseva
Flying back home from Austin, where FAST Global Science Summit dedicated to Angelman Syndrome took place in December, I was thinking of how amazing it would be to organise something of a similar scale in the UK and every other country for that matter.