Food is Medicine
Discover the transformative power of dietary therapy for epilepsy and Angelman Syndrome with insights from Heidi Pfeifer’s “Food is Medicine” talk at the 2024 ASF Conference.
Epilepsy in Angelman Syndrome
Discover insights from the 2024 ASF Family Conference on managing epilepsy in Angelman Syndrome, featuring expert advice on treatments, triggers, and personalized care.
Effective Tips for IEP
Discover effective tips for navigating IEPs from Stacey Zimmerman. Learn to build positive school relationships, understand legal rights, and advocate for your child.
Building Resilient Caregivers
Discover Amanda Griffith-Atkins’ journey as a resilient caregiver, sharing insights on parenting a child with Prader-Willi syndrome and the power of community.
Behaviors and Anxiety in Angelman Syndrome
Explore the complex interplay of behaviours and anxiety in Angelman Syndrome with insights from experts, offering practical strategies for families at the 2024 ASF Conference.
ASF Clinical Network Panel Q&A
Join leading experts at the ASF Clinical Network Panel Q&A as they discuss managing Angelman Syndrome across the lifespan, offering insights and strategies for care.
2024 ASF Family Conference – Pharma and Biotech Industry Update
Discover the latest advancements in Angelman syndrome treatments from the 2024 ASF Family Conference, featuring insights from Ultragenyx and Ionis Pharmaceuticals.
10 Basic Financial Steps for Special Needs Caregivers
Discover essential financial steps for special needs caregivers. Learn about planning, benefits, housing, legal tools, and building a support team for future security.
Exciting News: Positive Interim Phase 1/2 Results
We are thrilled to share that Ultragenyx has released promising interim findings from their Phase 1/2 clinical trial involving patients living with the deletion genotype of Angelman syndrome.
Global Spotlight: Heather Brady
When we received Cecilia’s diagnosis in 2020 when she was 2 years old, it felt like an overwhelming blow, and when we were told there was no cure, we just could not accept this and started looking straight away at what we could do for our beautiful girl.