MavriX Bio Announces FDA Clearance of IND Application to Initiate First-in-Human Study of Gene Therapy for Angelman Syndrome
MavriX Bio, a clinical-stage biotechnology company focused on the development of transformative genetic therapies for Angelman syndrome (AS), today announced that the U.S. Food and Drug Administration (FDA) has cleared its Investigational New Drug (IND) application for MVX-220, an investigational adeno-associated virus (AAV) gene therapy for the treatment of AS. Read Press Release Read […]
2024 Global Science Summit Recap
The 17th Global Science Summit brought together over 1,000 in-person and virtual attendees from 55 countries around the world!
FAST Global Search & Rescue Initiative Joins the Global Angelman Syndrome Registry
A Unified Effort to Connect Families, Accelerate Research, and Find a Cure for Angelman Syndrome
Spreading Awareness on the Airwaves
As part of International Angelman Day, Heather Brady, Louise Prince, and Sarah Washbrook took to the airwaves to raise awareness about Angelman syndrome, the work of FAST UK, and the urgent need for research and support.
Sarah’s TV appearance and BBC Wales article
We’re so proud of Sarah Washbrook, a dedicated mum, advocate, and fundraiser, who is helping to shine a light on Angelman syndrome. She and her son, Ivor, were recently featured in a BBC Wales article about working carers, sharing the realities of life as a parent to a child with Angelman syndrome.
Alton Towers IAD Weekend 2025 – Celebrating 12 Years!
The 2025 Alton Towers event for International Angelman Day marked an incredible 12 years of bringing families together for a weekend of fun, connection, and celebration!
Cycle for Ceci Junior Fundraiser – Manchester
20th July 2025
Efia Quartey – Miss Great Britain Glasgow 2025 Charity Night – Glasgow
26th April 2025
Suevia’s Boxing Match Fundraiser UWCB – London
22nd March 2025
Alton Towers IAD Event – Stoke on trent
15th – 18th February 2025