admin, Author at Cure Angelman Syndrome

2024 Global Science Summit Recap

The 17th Global Science Summit brought together over 1,000 in-person and virtual attendees from 55 countries around the world!

Angelman Syndrome Caregiver Survey

Are you a caregiver for someone with Angelman syndrome? Your experiences are invaluable, and we want to hear from you.

FAST Global Search & Rescue Initiative Joins the Global Angelman Syndrome Registry

A Unified Effort to Connect Families, Accelerate Research, and Find a Cure for Angelman Syndrome

Spreading Awareness on the Airwaves

As part of International Angelman Day, Heather Brady, Louise Prince, and Sarah Washbrook took to the airwaves to raise awareness about Angelman syndrome, the work of FAST UK, and the urgent need for research and support.

Sarah’s TV appearance and BBC Wales article

We’re so proud of Sarah Washbrook, a dedicated mum, advocate, and fundraiser, who is helping to shine a light on Angelman syndrome. She and her son, Ivor, were recently featured in a BBC Wales article about working carers, sharing the realities of life as a parent to a child with Angelman syndrome.

Alton Towers IAD Weekend 2025 – Celebrating 12 Years!

The 2025 Alton Towers event for International Angelman Day marked an incredible 12 years of bringing families together for a weekend of fun, connection, and celebration!