Care following diagnosis HCP leaflet : focused on the care after diagnosis
This guide provides healthcare professionals with essential information about Angelman syndrome, including its genetic causes, clinical characteristics, diagnosis and management. Developed by the Foundation for Angelman Syndrome Therapeutics (FAST), it offers practical guidance to support informed care and improve outcomes for individuals living with Angelman syndrome.
Diagnosis HCP leaflet: focused on diagnosing AS
This guide provides healthcare professionals with essential information on recognising and diagnosing Angelman syndrome, including common symptoms, genetic testing and the importance of early diagnosis. It also highlights ongoing research and the potential for future treatments.
Newsletter September 2026
The September FAST UK newsletter shares the latest Angelman syndrome research news, clinical trial updates and community initiatives. It highlights new educational resources, guidance for families preparing for clinical trials, support for newly diagnosed families and fundraising opportunities, while encouraging continued awareness, involvement and connection across the Angelman community.
Newsletter March 2026
The FAST UK newsletter shares important developments in Angelman syndrome research, including progress in gene therapy, clinical trial updates and new approaches to measuring communication. It also highlights educational resources for families, International Angelman Day activities, community fundraising opportunities and ways to get involved in supporting research, raising awareness and connecting with the Angelman community.
Newsletter September 2025
The FAST UK newsletter highlights significant developments in Angelman syndrome research, including progress in gene therapy, breakthrough therapy designation for GTX-102 and updates on Phase 3 clinical trials. It also shares community fundraising achievements, awareness initiatives, upcoming scientific events and opportunities for families to get involved in supporting research and the wider Angelman community.
Newsletter March 2025
The March FAST UK newsletter shares updates on Angelman syndrome research, including planned Phase 3 clinical trials, alongside community news and awareness activities. Highlights include International Angelman Day celebrations, the Alton Towers family weekend, media awareness campaigns and opportunities for families to get involved, stay informed and connect with the wider Angelman community.
Newsletter December 2024
The December 2024 FAST UK newsletter shares the latest Angelman syndrome research developments, including updates on planned clinical trials, genetics education and scientific progress. It also highlights community stories, family experiences, awareness initiatives and resources designed to keep families informed, connected and supported.
Current AS pipeline
At FAST, it’s our job to push forward all promising Angelman syndrome (AS) programs, and to ensure that the community has a birds-eye view of the entire landscape. Many of these programs are funded by FAST. The progress made is truly promising.
Angelman syndrome Genetics 101
Learn about the genetics behind Angelman syndrome, including the role of genes and chromosomes, the different genetic causes of the condition, and what these mean for individuals and families.
FAST Pipeline
Explore the latest developments in Angelman syndrome research through FAST’s Drug Development Pipeline. Discover potential treatments currently being investigated, their progress through clinical development, and the ongoing efforts to bring new therapies closer to families.