2024 Global Science Summit Recap

The 17th Global Science Summit brought together over 1,000 in-person and virtual attendees from 55 countries around the world!

The Power of Advocacy

Discover the impact of advocacy in rare diseases with insights from Ryan Fischer at the 2024 ASF Family Conference. Learn how to drive change for Angelman Syndrome.

The Journey to Better Therapeutics

Join Dr. Rebecca Burdine’s inspiring journey at the 2024 ASF Family Conference, exploring breakthroughs in Angelman Syndrome research and future therapeutic developments.

Survey Says… Your Data Matters

Discover how data drives research and treatment for Angelman Syndrome. Learn about registries, studies, and the impact of your participation.

Stepping into ACC

Empower families and caregivers with “Stepping into AAC,” a project offering resources and community support to enhance communication for AAC users.

Starting Over with Communication

Join the 2024 ASF Family Conference session “Starting Over with Communication” for practical AAC strategies, community support, and empowering insights.

Sleep in Angelman Syndrome (or lack therof)

Discover effective strategies for managing sleep disturbances in Angelman Syndrome. Learn about sleep schedules, environments, and interventions from expert Amanda Tourjee.