Angelman Syndrome, Apraxia, Anxiety, and AAC
Explore Angelman Syndrome, apraxia, and anxiety, and learn how Augmentative and Alternative Communication (AAC) can aid in managing behaviors. Discover the importance of visual supports and strategies to support communication and reduce anxiety.
Angelman Academy: Introduction to AAC
Explore Augmentative and Alternative Communication (AAC) with Angelman Academy. Learn about its principles, multimodal communication, functions, and how to choose the right AAC system.
FAST AS CSF Collection Study Community Presentation
Join Biogen’s AS CSF Collection Study to investigate UBE3A protein as a biomarker for Angelman syndrome. Open for enrollment until August 2021. Learn more and get involved.
Roche Genentech Webinar
Join Roche and Genentech’s webinar to learn about their Angelman Syndrome program, updates on the FREESIAS study, and the Phase 1 TANGELO study. Stay informed and engaged!
Warrior Families: Advancing Regenerative Medicine Through Science
Join the Warrior Families webinar by the FDA’s Office of Therapeutic Products, focusing on the role of families in advancing regenerative medicine for rare diseases. Learn from experts, engage in Q&A, and explore patient-centered approaches.
A Joint Community Webinar with Dr. Berry-Kravis on Roche updates
Join our webinar with Dr. Berry-Kravis discussing Roche updates, TANGELO study, and future research. Learn about trial logistics, patient care, and lessons learned from setbacks.