2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK
Join our webinar for updates on the Natural History Study and clinical trials for Angelman syndrome in the UK. Learn about ongoing research, eligibility criteria, and community involvement.
2022 February: Community Webinar about Natural History Study and Clinical Trials progress
Join the FAST UK webinar for updates on the Natural History Study and ongoing clinical trials in Oxford. Learn about Angelman Syndrome research, patient recruitment, and therapeutic development.
Community Webinar: Clinical Trials Basics with Jennifer Panagoulias
Join Jennifer Panagoulias in our community webinar as she provides an insightful introduction to clinical trials, their importance, and considerations for parents. Stay informed and engaged!
Dr Theodora Markati on the Angelman Syndrome Therapies in Development
Explore Angelman Syndrome therapies with Dr. Theodora Markati from the University of Oxford. Learn about upstream, downstream treatments, and the importance of objective measures in clinical trials.
Prof Servais on the GTX-102 Phase 1/2 clinical trial in the UK
Explore Prof. Servais’ insights on the GTX-102 Phase 1/2 clinical trial in the UK. Learn about the drug’s potential, previous studies, and future prospects in treating neuromuscular diseases.
Q&A about the ACES-ICT – Inclusion program
Explore the ACES-ICT inclusion program at PS15 with teachers Rachel Marks and Catherine Lipkin. Learn about the power of inclusion in education and how it benefits all students.
Narrative Supports: An Angelman Community Webinar
Join Kate Ahern in a webinar exploring the power of narrative supports for individuals with Angelman Syndrome. Learn how to create empowering social stories and implement them effectively.
Getting started with AAC – Motivate, Model, and Move Out of the Way
Explore the basics of augmentative and alternative communication (AAC) with Angelman Academy. Learn about robust AAC systems, vocabulary arrangement, and effective implementation strategies for individuals with Angelman Syndrome.
Gaining language:What to Consider & how to start
Explore the journey of gaining language through AAC with Speech-Language Pathologist, Caroline Woeber. Learn about AAC, its evaluation process, and the role of communication partners.
Behavioral and Anxiety concerns in Angelman Syndrome
Explore Dr. Christopher Keary’s insights on behavioral and anxiety concerns in Angelman Syndrome. Learn about case studies, research findings, and treatment approaches.