Explore FAST Science Summits, ASF Family Conferences and scientific symposiums, featuring research updates, expert insights and practical guidance for families affected by Angelman syndrome.
Clinical Development Update: NNZ-2591 as a Treatment for Angelman Syndrome
Explore the latest updates on NNZ-2591, a promising treatment for Angelman syndrome by Neuren Pharmaceuticals. Learn about its clinical development, study progress, and future plans.
Angelman Syndrome Natural History Study – How has it Benefited the Angelman Community over the Last 17 years?
Explore Dr. Wen-Hann Tan’s 17-year study on Angelman Syndrome, its impact on the community, and future research directions. Learn about the importance of natural history studies in understanding disease progression.
An Update on HALOS Clinical Trial in Individuals Living with Angelman Syndrome
Get the latest update on the HALOS clinical trial for Angelman syndrome treatment. Discover the approach, preliminary findings, and future steps in this groundbreaking research by Ionis Pharmaceuticals.
Get the latest updates on Angelman syndrome drug development and clinical trials from the 2022 ASF Family Conference. Learn about progress from Roche, Ultragenyx, PTC Therapeutics, Ionis, Biogen, and Neuren Pharmaceuticals.
Explore the common behavioral issues and anxiety in individuals with Angelman Syndrome. Learn about their frequency, severity, causes, and effective strategies for management and intervention.
Stepping Into AAC. Family supports for enhancing communication
Explore the Stepping into AAC project, a collaboration between the Angelman Syndrome Foundation and PrAACtical AAC, providing resources to enhance family’s AAC journeys.
Join Mary Anne Elhert at the 2023 ASF Virtual Conference as she shares valuable insights on disability planning. Learn about Protected Tomorrow’s mission, services, and upcoming classes. Your guide to a secure future.
Explore effective strategies to manage behavior problems and anxiety in Angelman syndrome. Learn about behavioral and medical interventions, and participate in our research.
Explore comprehensive adult care for Angelman Syndrome with Jessica Duis, Director of the Angelman Syndrome Clinic. Learn about transition programs, guardianship, long-term planning, nutritional and behavioral changes, and more.
