FAST Global Search & Rescue Initiative Joins the Global Angelman Syndrome Registry
A Unified Effort to Connect Families, Accelerate Research, and Find a Cure for Angelman Syndrome
Parent Blog: Our son, Hudson, is our real life Angel! …by Charlene Cooper
Our son, Hudson, is our real life Angel! Our blue eyed boy was born on 1st December 2020, eager to meet us as he came 3 weeks early. Hudson’s big sisters, Amelia and Madison were delighted with their new role as…
Supporting FAST UK and raising awareness of Angelman Syndrome – our journey so far… by Sarah Washbrook
So where did it all begin? I knew very early on that something was unique about Ivor. I waved my hands, but people said I was fussing; he’s just a boy. I suppose this is when the grieving started for me, the fear, the worries.
International Angelman Day @ Alton Towers
February 15th 2023, marks the 10 year anniversary of International Angelman Day, It is also the tenth year that an Angelman group, created by an Angelman mum, Linda Holmes, took place at their usual venue Alton Towers.
Reflections on FAST Science Summit & Gala 2021 by Irina Karaseva
Flying back home from Austin, where FAST Global Science Summit dedicated to Angelman Syndrome took place in December, I was thinking of how amazing it would be to organise something of a similar scale in the UK and every other country for that matter.