Parent Blog: Carers Week 2026 – Please, give us a smile…by Sarah Washbrook
Please, give us a smile
I’m Mum to 6 year old Ivor, who lives with Angelman syndrome. This is a rare neurogenetic disorder affecting about 1 in 15,000 – about 500,000 worldwide.
People living with Angelman syndrome are significantly intellectually disabled, have balance and coordination issues, motor impairments and many have debilitating seizures.
Some will never walk. Most will never talk.
Life changing.
I’d like you to step into my life as a parent carer, just for one day.
Parent Blog: Our son, Hudson, is our real life Angel! …by Charlene Cooper
Our son, Hudson, is our real life Angel! Our blue eyed boy was born on 1st December 2020, eager to meet us as he came 3 weeks early. Hudson’s big sisters, Amelia and Madison were delighted with their new role as…
Supporting FAST UK and raising awareness of Angelman Syndrome – our journey so far… by Sarah Washbrook
So where did it all begin? I knew very early on that something was unique about Ivor. I waved my hands, but people said I was fussing; he’s just a boy. I suppose this is when the grieving started for me, the fear, the worries.
International Angelman Day @ Alton Towers
February 15th 2023, marks the 10 year anniversary of International Angelman Day, It is also the tenth year that an Angelman group, created by an Angelman mum, Linda Holmes, took place at their usual venue Alton Towers.
Reflections on FAST Science Summit & Gala 2021 by Irina Karaseva
Flying back home from Austin, where FAST Global Science Summit dedicated to Angelman Syndrome took place in December, I was thinking of how amazing it would be to organise something of a similar scale in the UK and every other country for that matter.