Behavior and Anxiety in Angelman Syndrome
Explore effective strategies to manage behavior problems and anxiety in Angelman syndrome. Learn about behavioral and medical interventions, and participate in our research.
Adult Care in Angelman Syndrome
Explore comprehensive adult care for Angelman Syndrome with Jessica Duis, Director of the Angelman Syndrome Clinic. Learn about transition programs, guardianship, long-term planning, nutritional and behavioral changes, and more.
Abnormal Movements in AS
Explore Dr. Robert Carson’s insights on understanding and managing abnormal movements in Angelman Syndrome. Learn about non-epileptic myoclonus and future research plans.
ASF Center of Excellence
Explore the Angelman Syndrome Foundation Center of Excellence, offering comprehensive care, education, and support for individuals with Angelman Syndrome. Reach out for help today!
2023 Ultragenyx Update
Join the 2023 ASF Virtual Conference to learn about Ultragenyx’s latest developments in rare disease treatments, including the GTX-102 program for Angelman syndrome.
2023 Neuren Pharmaceuticals Update
Explore Neuren Pharmaceuticals’ latest updates on their clinical development program for Angelman Syndrome, including progress on Trofinetide and NNZ-2591 treatments.
2023 Ionis Pharmaceuticals Update
Explore Ionis Pharmaceuticals’ commitment to developing treatments for Angelman Syndrome, their progress in the HALOS clinical trial, and their dedication to genetic medicine.
2023 ASF Virtual Conference – Intro
Join the 2023 ASF Virtual Conference! Discover our achievements, future plans, and how you can help support the Angelman Syndrome Foundation. Enjoy at your convenience.
2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK
Join our webinar for updates on the Natural History Study and clinical trials for Angelman syndrome in the UK. Learn about ongoing research, eligibility criteria, and community involvement.
2022 February: Community Webinar about Natural History Study and Clinical Trials progress
Join the FAST UK webinar for updates on the Natural History Study and ongoing clinical trials in Oxford. Learn about Angelman Syndrome research, patient recruitment, and therapeutic development.