2024 ASF Family Conference

• 10 Basic Financial Steps for Special Needs Caregivers
  Discover essential financial steps for special needs caregivers. Learn about planning, benefits, housing, legal tools, and building a support team for future security.
• 2024 ASF Family Conference – Pharma and Biotech Industry Update
  Discover the latest advancements in Angelman syndrome treatments from the 2024 ASF Family Conference, featuring insights from Ultragenyx and Ionis Pharmaceuticals.
• ASF Clinical Network Panel Q&A
  Join leading experts at the ASF Clinical Network Panel Q&A as they discuss managing Angelman Syndrome across the lifespan, offering insights and strategies for care.
• Behaviors and Anxiety in Angelman Syndrome
  Explore the complex interplay of behaviours and anxiety in Angelman Syndrome with insights from experts, offering practical strategies for families at the 2024 ASF Conference.
• Building Resilient Caregivers
  Discover Amanda Griffith-Atkins’ journey as a resilient caregiver, sharing insights on parenting a child with Prader-Willi syndrome and the power of community.
• Effective Tips for IEP
  Discover effective tips for navigating IEPs from Stacey Zimmerman. Learn to build positive school relationships, understand legal rights, and advocate for your child.
• Epilepsy in Angelman Syndrome
  Discover insights from the 2024 ASF Family Conference on managing epilepsy in Angelman Syndrome, featuring expert advice on treatments, triggers, and personalized care.
• Food is Medicine
  Discover the transformative power of dietary therapy for epilepsy and Angelman Syndrome with insights from Heidi Pfeifer’s “Food is Medicine” talk at the 2024 ASF Conference.
• Future planning for You and Your Child
  Plan a secure future for your child with disabilities by building a strong support network. Learn practical steps and tools like the Relationship Circle.
• Gastrointestinal Dysfunction in Angelman syndrome
  Explore GI dysfunction in Angelman Syndrome with insights from experts. Learn about causes, common issues, and management strategies to improve quality of life.
• Genetics of AS 101: Why Better Therapeutics are Possible
  Discover the genetics of Angelman syndrome and explore promising therapeutic strategies with insights from Rebecca Burdine’s talk at the 2024 ASF Family Conference.
• Genetics of AS 102: Genotypes & Family Planning
  Explore the genetic diversity of Angelman Syndrome and family planning insights from the 2024 ASF Family Conference. Gain confidence in navigating local resources.
• Insurance, Advocacy, and Resources for Caregivers of Individuals with Angelman syndrome
  Discover essential insurance, advocacy, and resources for Angelman syndrome caregivers. Eric Wright shares practical advice and personal insights to empower families.
• Keynote: What We’ve Learned from Angelman Research
  Discover breakthroughs in Angelman Syndrome research with Dr. Ype Elgersma’s insights on genetics, mouse models, and promising gene therapies at the ASF Conference.
• Research Panel Q&A
  Discover insights from the 2024 ASF Family Conference’s Research Panel Q&A on Angelman Syndrome, featuring innovative treatment approaches and the role of advocacy.
• Sleep in Angelman Syndrome (or lack therof)
  Discover effective strategies for managing sleep disturbances in Angelman Syndrome. Learn about sleep schedules, environments, and interventions from expert Amanda Tourjee.
• Starting Over with Communication
  Join the 2024 ASF Family Conference session “Starting Over with Communication” for practical AAC strategies, community support, and empowering insights.
• Stepping into ACC
  Empower families and caregivers with “Stepping into AAC,” a project offering resources and community support to enhance communication for AAC users.
• Survey Says… Your Data Matters
  Discover how data drives research and treatment for Angelman Syndrome. Learn about registries, studies, and the impact of your participation.
• The Journey to Better Therapeutics
  Join Dr. Rebecca Burdine’s inspiring journey at the 2024 ASF Family Conference, exploring breakthroughs in Angelman Syndrome research and future therapeutic developments.
• The Power of Advocacy
  Discover the impact of advocacy in rare diseases with insights from Ryan Fischer at the 2024 ASF Family Conference. Learn how to drive change for Angelman Syndrome.
• The Relationship Between Cortical Visual Impairment (CVI) and Communication
  Explore the link between Cortical Visual Impairment and communication in children with disabilities. Learn about challenges, solutions, and Dr. Erickson’s research insights.
• Toilet Training Tips & Tricks for Caregivers of Individuals with Developmental Disabilities
  Discover effective toilet training strategies for individuals with developmental disabilities. Learn from experts on readiness, reinforcement, and achieving long-term success.
• Transition Planning with Protected Tomorrows
  Discover expert insights on transition planning for families with special needs from Mary Anne Ehlert. Learn about financial, legal, and support strategies for the future.