2021 ASF Virtual Family Conference

  • Angelman Syndrome Genetics 101 and 102
    Explore the genetics of Angelman Syndrome with Rebecca Burdine at the 2021 ASF Virtual Family Conference. Learn about DNA, genes, therapeutic strategies, and the importance of clinical trials.
  • Behavior and Anxiety in Angelman Syndrome – 2021
    Explore the relationship between behavior and anxiety in Angelman Syndrome. Learn about common challenges, treatment options, and the importance of individualized approaches from expert panelists.
  • Clinical trials in Angelman syndrome
    Join the 2021 ASF Virtual Family Conference for a panel discussion on clinical trials in Angelman syndrome. Ask questions, gain clarity, and learn about exciting developments in the community.
  • Communication Basics and Angelman Syndrome
    Explore communication basics and strategies for individuals with Angelman Syndrome with speech-language pathologist, Tabi Jones-Wohleber. Learn about AAC, language development, and effective partnerships.
  • Communication Panel
    Join our expert panel as they share insights and tips on navigating the communication journey for individuals with Angelman syndrome. Learn from their experiences and valuable advice.
  • Developing therapies for Angelman syndrome
    Join our panel discussion on developing therapies for Angelman Syndrome at the 2021 ASF Virtual Family Conference. Learn about therapeutic development, clinical trials, and stay engaged in the research.
  • Diet and Angelman syndrome
    Explore the benefits of a ketogenic diet for individuals with Angelman Syndrome with Heidi Pfeifer. Learn about its history, implementation, and positive outcomes in reducing seizures.
  • Financial & long-term planning for special needs futures – 1. Overview
    Join Mary Anne Ehlert’s webinar on special needs planning. Covering government benefits, legal considerations, retirement planning, and more. Secure a full, happy, and financially stable future.
  • Financial & long-term planning for special needs futures – 2. Government Benefits
    Explore the complexities of government benefits for special needs with Mary Anne Ehlert. Learn about the application process, rules, and how to effectively plan for your loved one’s future.
  • Financial & long-term planning for special needs futures – 3. Legal
    Explore legal planning for special needs futures with Protected Tomorrows. Learn about trusts, finding the right attorney, and making crucial decisions for your child’s secure future.
  • Financial & long-term planning for special needs futures – 4. ABLE Act
    Explore the ABLE Act’s role in financial planning for individuals with special needs. Learn about its key features, practical uses, and tips for effective use. Secure a brighter future for your loved ones.
  • Financial Planning Q&A
    Explore key insights from the 2021 ASF Virtual Family Conference’s Financial Planning Q&A. Learn about special needs trusts, ABLE accounts, SSI, and more from expert Mary Anne Ehlert.
  • Financial and long-term planning for a special needs family member – 5. Retiring for Three
    Join Mary Anne Ehlert in a webinar on retirement planning for families with a special needs member. Learn about financial considerations, government benefits, estate planning, and building a support team.
  • IEPs and Angelman Syndrome
    Join Michelle Harvey-Martin at the 2021 ASF Virtual Family Conference as she shares insights on Individualized Education Programs (IEPs) for children with Angelman Syndrome. Learn to navigate the IEP process effectively.
  • Insurance, Waivers and Angelman Syndrome – Community Alternatives
    Join Dr. Eric Wright as he navigates the complexities of insurance and waivers for Angelman Syndrome. Learn about government benefits, advocacy groups, and resources to improve the quality of life for affected individuals.
  • Medical Care for All Ages in Angelman syndrome
    Join our 2021 ASF Virtual Family Conference for expert insights on medical care for all ages with Angelman syndrome. Discuss sleep, behavior, seizures, and more.
  • Newly Diagnosed with Angelman Syndrome
    Join our 2021 ASF Virtual Family Conference for insights on Angelman Syndrome from experienced parents and advocates, Dr. Elizabeth Jalazo and Kathryn Ely. Learn about diagnosis, diet impact, self-care, and future therapies.
  • Pharma and Biotech Industry update Aug 2021
    Explore the Pharma and Biotech Industry Update for August 2021, highlighting key developments in potential treatments for Angelman syndrome from leading pharmaceutical companies.
  • Seizures in AS with Ron Thibert
    Explore Dr. Ron Thibert’s insights on seizures in Angelman Syndrome, their treatment, and the role of EEGs. Learn about medications like Epidiolex and lifestyle adjustments for management.
  • Siblings of Individuals with Angelman Syndrome Panel Discussion
    Join our panel discussion on siblings of individuals with Angelman Syndrome. Gain insights from personal experiences, advice for parents, and learn about upcoming support resources.
  • Sleep and Angelman syndrome
    Explore sleep challenges in Angelman Syndrome, understand its unique sleep architecture, and discover effective management strategies for improved sleep quality and overall well-being.
  • Welcome to 2021 ASF Family Conference
    Join the 2021 ASF Virtual Family Conference to learn about Angelman Syndrome, hear updates from the foundation, and explore ways to support the community. Get involved today!