Housing Options for Adults with AS

Quick Overview

The speaker discusses housing options for adults with Autism Spectrum Disorder (AS). She emphasizes the importance of finding suitable housing options and the challenges faced by families in planning for the future. The speaker explains the role of Medicaid in funding long-term services and supports, and the need to advocate for adequate funding. She also discusses the Home and Community-Based Services (HCBS) settings rule, which aims to ensure that community-based dollars are spent in the community and that individuals have choice and control over their living arrangements. The speaker highlights the Fair Housing Act and the protection it provides for individuals with disabilities. She mentions the Section 811 program, which provides capital grants and operating subsidies for non-profit housing groups, and the importance of separating housing from support services. The speaker encourages advocacy and provides resources for further information.

Housing is a major concern for adults with Autism Spectrum (AS) and their families. The question of where and how they will live is a daunting one. To shed light on this topic, we have invited an expert from the Arc of the United States to speak at our conference. Nicole Jorwic, the Senior Director of Public Policy for the Arc, will provide valuable information and insights on housing options for adults with AS.

Introduction

Nicole Jorwic, a sibling of an individual with AS, has extensive experience in the field of disability advocacy. She has worked on public policy and has a deep understanding of the challenges faced by families in finding suitable housing options. Nicole will share her personal journey and professional expertise to help families navigate the complex world of housing for adults with AS.

The Importance of Housing

Historically, individuals with disabilities were often placed in institutions or kept at home by their families. However, there has been a shift towards community living and inclusion. The Arc, founded by families who wanted more for their loved ones with disabilities, has been at the forefront of advocating for community-based living options.

Understanding Medicaid

Medicaid plays a crucial role in funding long-term services and supports for individuals with disabilities. It is a state and federal partnership program that provides healthcare and other services. However, it is important to note that Medicaid does not cover room and board expenses. It primarily funds the services needed for individuals to live in the community.

The Home and Community-Based Services Rule

The Home and Community-Based Services (HCBS) rule, implemented in 2014, ensures that community-based dollars are spent in the community and that individuals have a say in their services. It requires person-centered planning and the availability of non-disability-specific settings. States are currently working towards compliance with this rule.

Funding for Housing

Housing funding is primarily provided through the Department of Housing and Urban Development (HUD). Section 811 is a program that offers capital grants and operating subsidies for non-profit housing organizations. It aims to provide permanent supportive housing for individuals with disabilities. Other funding sources include low-income housing tax credits and private foundation funds.

Advocacy and Resources

Advocacy is crucial in ensuring that individuals with disabilities have access to suitable housing options. It is important to connect with local Arc chapters, disability rights organizations, and housing authorities to stay informed about available resources and opportunities. The Arc’s website and the National Disability Rights Network are valuable sources of information.

Overcoming Challenges

Challenges such as NIMBY (Not In My Backyard) opposition to disability housing developments can be addressed through community organizing and legal advocacy. Protection and advocacy organizations can provide support in cases of discrimination or unfair treatment. Building a strong network of individuals and organizations can help overcome these challenges.

Individualized Housing Options

The ideal housing option for adults with AS varies depending on their individual needs and preferences. The goal is to empower individuals and families to make choices that suit their unique circumstances. The continuum of housing options includes living at home, group homes, and independent living in apartments. The focus should be on ensuring access to community-based living and individualized supports.

Conclusion

Finding suitable housing options for adults with AS is a complex process that requires advocacy, research, and collaboration. By staying informed, connecting with local organizations, and advocating for individualized options, families can work towards ensuring a fulfilling and inclusive living environment for their loved ones with AS.