Neurobehavioral Approaches in Angelman Syndrome Part 2
This presentation discusses neurobehavioral approaches in Angelman Syndrome, focusing on the Health Watch Table and online behavior modules. The aim is to help individuals with Angelman Syndrome receive appropriate care and support for their physical, behavioral, and mental health. The presentation includes case examples and emphasizes the importance of addressing underlying medical, physical, and emotional conditions, as well as creating a supportive environment. The use of applied behavior analysis (ABA) and medication management is also discussed. The presentation concludes by highlighting the need to consider self-injurious behavior and the potential use of cannabinoids as a treatment option.
In this talk, we will be discussing neurobehavioral approaches in Angelman Syndrome. This is a continuation of our session from the 2017 ASF Family Conference. We will be focusing on the Health Watch Table for Angelman Syndrome and the online behavior modules that have been developed. Our aim is to provide information on how these resources can be used to support individuals with Angelman Syndrome and improve their overall health and well-being.
Jane Summers is a psychologist at the Center for Addiction and Mental Health in Toronto. Dr. Erick Sell is a neurologist at Children’s Hospital of Eastern Ontario. We met at a conference a few years ago and decided to collaborate on a clinic in Ottawa to help families and children with Angelman Syndrome. We are grateful for the support of the Canadian Angelman Syndrome Society, which has made our clinic possible.
The Health Watch Table
The Angelman Syndrome Health Watch Table is a valuable resource for understanding the health-related needs of individuals with Angelman Syndrome. It provides guidelines for providing anticipatory guidance and surveillance around these healthcare needs. The table covers a range of areas, including mental health and behavioral issues, safety, and pain and discomfort.
Optimizing Behavioral and Mental Health
In addition to the Health Watch Table, there are online behavior modules available that provide guidance on optimizing behavioral and mental health in individuals with Angelman Syndrome. These modules cover topics such as communication, cognitive and sensory issues, and mental health influences on behavior. They can be a helpful tool for parents and caregivers in understanding and addressing challenging behaviors.
Case Example: Daniel
To illustrate the use of the Health Watch Table and behavior modules, we will discuss a case example of a young man named Daniel. Daniel recently moved to a group home due to his parents’ declining health. He has started to exhibit aggressive behavior and has lost interest in activities he used to enjoy. By using the Health Watch Table and behavior modules, a team of professionals can work together to understand and address Daniel’s behavior.
Neurobehavioral approaches are essential in supporting individuals with Angelman Syndrome. The Health Watch Table and behavior modules provide valuable guidance for addressing physical, behavioral, and mental health needs. By working together and utilizing these resources, we can help individuals with Angelman Syndrome reach their full potential and improve their quality of life.
- Title: Neurobehavioral Approaches in Angelman Syndrome Part 2
- Author(s): Jane Summers, Erick Sell
- Author(s)’ affiliation: Children’s Hospital of Eastern Ontario
- Publication date: 2017-08-14
- Collection: 2017 ASF Family Conference