Fundraising Events

Whether it’s running a half marathon or hosting your own charity gaming livestream, choose your fundraising event and help find a cure for Angelman syndrome faster.

Upcoming Events

ART FOR ANGELMAN

The unique art exhibition and raffle which returns on October 5th at Great Western Studios, W2 to raise funds for the Foundation for Angelman Syndrome Therapeutics UK (FAST UK) and awareness of Angelman Syndrome.

Join us for an unforgettable evening of art, fun, drinks, music and merriment. With limited ticket availability, your ticket to our exclusive exhibition not only grants you access to a stunning array of artworks, whereby 101 artists have kindly donated their time and talent to ‘Art for Angelman’, but also guarantees you a place in our special art raffle. Every piece of art exhibited will be up for grabs with your ticket being your entry into this unique raffle.

Do not miss the chance to take home a fantastic piece of art and purchase your tickets here today before they are sold out.

Buy tickets – Art for Angelman 2024 – Great Western Studios (tickettailor.com)

Royal Parks Half Marathon

Join an inspirational team of fundraisers and do something extraordinary to help find a cure for Angelman syndrome.

About the run

Take part in this spectacular half marathon on closed roads through four beautiful Royal Parks on 8 October. The 13.1 mile course will take you past world-famous landmarks, and as part of the FAST UK team, you’ll enjoy fantastic support from our members along the route.

Your charity place

Secure your place on the start line by contacting us today. We have a fundraising target of £1500.

Sign me up

Why Team FAST UK?

You’ll be running as part of an inspiring team of fellow fundraisers, who share their reasons for running with FAST UK. We believe that it’s possible to cure Angelman syndrome and we need to bring the day of finding the cure forward. Your participation in raising funds for FAST UK is crucial to making it happen.

Want to run with? Join us and receive:

a complimentary professional running vest
cheering along the route by FAST UK members
the satisfaction of knowing you’re bringing the day when Angelman syndrome is curable forward

For more information on the race and a look at the scenic route, please visit the Royal Parks Half Marathon website.

Use hashtags #RunforAScure and #CureAngelmanNow to share your training journey and raise awareness.

You can fundraise for this run as a part of the FAST UK CAN Campaign using JustGiving page here.

Cakes and Smiles

We have launched a Cakes & Smiles campaign. It’s an opportunity to raise awareness about Angelman Syndrome amongst a group of colleagues at work, your social club or a circle of friends who may not be that familiar with the syndrome. It can be a virtual event or an in-person one, whichever format you wish to choose.

In a more traditional pre-pandemic sense it could be a coffee morning or a tea party where you sort out the coffees and cakes and invite people over to share either your story or a story of your friend who has a family member with Angelman Syndrome. Your guests will have an opportunity to ask questions, understand the symptoms, and hopefully donate towards your Cakes & Smiles campaign.

It’s called “Cakes and Smiles” for a couple of reasons. Hopefully, you will have a good time socialising, but also it’s a reference to one of the key symptoms of Angelman Syndrome – happy demeanour.

We’ve got some more details and useful resources (e.g. quiz questions, colouring book, banners) here.

Read about Cakes & Smiles event organisation and get access to our resources that will help you make your event a success

Go for Cakes & Smiles

Previous Events

‘Castle to Castle’ Bike Ride

By Heather Brady (21st July 2024)

The ‘Cycle for Ceci’ team has done it again! This amazing group of cyclists recently completed a gruelling 250+ mile ride from the northern tip of Wales down to Tenby in the south, all in the name of raising awareness for Angelman syndrome, supporting FAST UK in their mission and honouring our daughter Cecilia. Our ride, aptly named ‘Castle to Castle’, saw the team visiting numerous historic castles scattered across the beautiful Welsh countryside, creating a unique backdrop for their inspirational journey.

This year’s ride was no easy feat. The team faced numerous challenges along the way – from the blistering sun to torrential down pours, burnt-out shoes and bike breakdowns to multiple punctures. But their spirit remained unbroken. With every pedal stroke, they not only advanced closer to their destination but also brought more attention to Angelman syndrome.

The ‘Cycle for Ceci’ team, named in honour of our beautiful daughter Cecilia, has been riding together since 2021. Their first ride took them from Manchester to Edinburgh, marking the beginning of our journey to make a difference. Since then, we have continued to undertake challenging rides, driven by our mission to support research and raise awareness.

Every evening after conquering the day’s mileage and climbing over 1500 feet in elevation, the team gathered for good food, drinks, and celebrations. These moments of camaraderie and shared achievement underscored the tight bond within the team and their unwavering commitment to supporting each other through thick and thin.

Each castle they visited stood as a testament to enduring strength, much like the ‘Cycle for Ceci’ team and the families affected by Angelman syndrome.

They have shown that with teamwork, resilience, and a shared goal, we can overcome any obstacle. The ‘Cycle for Ceci’ team will continue to ride for causes as long as they can, driven by the love for Cecilia and the hope for a better future for all those affected by Angelman syndrome.

Thank you to everyone who supported the ride, cheered the team on, and donated to our cause. Your contributions make a significant difference, and together, we can achieve amazing things.

The ‘Ceci’ Golf day & Gala Dinner

We are delighted to share the success of The ‘Ceci’ Golf Day and Gala Dinner held at the Worsley Park Marriott on 21st June 2024, organized by Heather Brady. This event brought together supporters from across the country, including golf professionals who joined them for a day of sport and camaraderie.

The day was filled with excitement on the greens, as participants enjoyed friendly competition and the picturesque setting. The beautiful weather and the stunning course at Worsley Park provided the perfect backdrop for a memorable day of golf. In the evening, the Gala Dinner was a wonderful opportunity to come together, share stories, and celebrate the memory of Cecilia, who is deeply missed.

Attendees were very lucky to have a video dedicated to the event, adding a special touch to the day’s proceedings. Additionally, they gained valuable insights from Dr. Levin of Ovid Therapeutics, who shared the efforts in the field of Angelman syndrome research.

Beyond being a day of enjoyment, this event also served as a significant fundraiser, raising both funds and awareness for FAST UK. It’s heart warming to see our community unite for such a meaningful cause. The evening was filled with heartfelt speeches, an inspiring auction, and a palpable sense of unity and purpose.

We extend our heartfelt thanks to Heather Brady and everyone involved in organizing and participating in The ‘Ceci’ Golf Day and Gala Dinner. Your dedication and generosity make a tremendous impact in our efforts to support individuals with Angelman Syndrome and their families. This event is a testament to the power of community and the enduring legacy of Cecilia.

Thank you all for your continued support and for helping us make a difference. We look forward to seeing you at future events as we continue to work towards a brighter future for those affected by Angelman syndrome.

5km Family Fun Run and Feast for FAST UK

By Katherine Jarvis

On 27 August 2022, I, along with two others, decided to organise a 5km family fun run and feast in aid of FAST UK. I am a close friend and have known the Keogh family for a very long time. We have grown up holidaying in the same place since we were small and I, like Tam and Tom, have 3 children. We have seen Amelia grow up and she inspires so many of us every time we see her, which is mainly in half terms and holidays.

Henry Deakin, his wife Jo, Jo’s sister Lucy and I decided to take on organising this fun run over the cliff tops and beaches of a special place we all go to on the North Coast of Cornwall. We sent out a flyer to family and friends and drummed up interest and charged adults and children to take part, whether they were going to run it or walk it. Either way, we encouraged people to join in with dogs, babies in buggies, the old, the young and all in between. We planned our route which started at Trevose Golf Club and went up towards the Padstow Lifeboat Station and then took a turn towards Trevose Head and its lighthouse, only to descend the headland and cross two beaches to the finish line.

At the finish line people were met by an incredible feast, all donated and put on by the amazing Jolly Hog, who happens to be a friend of ours. They served up incredible Paella, bursting with prawns and chorizo and also delicious hot dogs for the kids. We were so incredibly lucky as it was the most perfect Cornish summer day and the sun shone and so many people took part, were up for the challenge to race as well as those who took it a bit slower. There was prize giving with all things FAST UK as well as sweat bands, branded balloons, banners and t-shirts.

The day for FAST could not have gone any better, it brought many people together and everyone applauded us for a triumphant day. We have been encouraged to make it an annual event so watch this space for the FAST UK Cornish Fun Run and BBQ to be ongoing. In total, we raised about £3,000 all going to this amazing charity. We were also thrilled to raise lots of awareness for Angelman Syndrome with runners running along a packed beach. Passers-by were eager to know about our BBQ too and what the general finish line party was about!

Here’s to the 2023 Fun Run!