Whether it’s running a half marathon or hosting your own charity gaming livestream, choose your fundraising event and help find a cure for Angelman syndrome faster.
Cakes and Smiles
We have launched a Cakes & Smiles campaign. It’s an opportunity to raise awareness about Angelman Syndrome amongst a group of colleagues at work, your social club or a circle of friends who may not be that familiar with the syndrome. It can be a virtual event or an in-person one, whichever format you wish to choose.
In a more traditional pre-pandemic sense it could be a coffee morning or a tea party where you sort out the coffees and cakes and invite people over to share either your story or a story of your friend who has a family member with Angelman Syndrome. Your guests will have an opportunity to ask questions, understand the symptoms, and hopefully donate towards your Cakes & Smiles campaign.
It’s called “Cakes and Smiles” for a couple of reasons. Hopefully, you will have a good time socialising, but also it’s a reference to one of the key symptoms of Angelman Syndrome – happy demeanour.
We’ve got some more details and useful resources (e.g. quiz questions, colouring book, banners) here.
5km Family Fun Run and Feast for FAST UK
By Katherine Jarvis
On 27 August 2022, I, along with two others, decided to organise a 5km family fun run and feast in aid of FAST UK. I am a close friend and have known the Keogh family for a very long time. We have grown up holidaying in the same place since we were small and I, like Tam and Tom, have 3 children. We have seen Amelia grow up and she inspires so many of us every time we see her, which is mainly in half terms and holidays.
Henry Deakin, his wife Jo, Jo’s sister Lucy and I decided to take on organising this fun run over the cliff tops and beaches of a special place we all go to on the North Coast of Cornwall. We sent out a flyer to family and friends and drummed up interest and charged adults and children to take part, whether they were going to run it or walk it. Either way, we encouraged people to join in with dogs, babies in buggies, the old, the young and all in between. We planned our route which started at Trevose Golf Club and went up towards the Padstow Lifeboat Station and then took a turn towards Trevose Head and its lighthouse, only to descend the headland and cross two beaches to the finish line.
At the finish line people were met by an incredible feast, all donated and put on by the amazing Jolly Hog, who happens to be a friend of ours. They served up incredible Paella, bursting with prawns and chorizo and also delicious hot dogs for the kids. We were so incredibly lucky as it was the most perfect Cornish summer day and the sun shone and so many people took part, were up for the challenge to race as well as those who took it a bit slower. There was prize giving with all things FAST UK as well as sweat bands, branded balloons, banners and t-shirts.
The day for FAST could not have gone any better, it brought many people together and everyone applauded us for a triumphant day. We have been encouraged to make it an annual event so watch this space for the FAST UK Cornish Fun Run and BBQ to be ongoing. In total, we raised about £3,000 all going to this amazing charity. We were also thrilled to raise lots of awareness for Angelman Syndrome with runners running along a packed beach. Passers-by were eager to know about our BBQ too and what the general finish line party was about!
Here’s to the 2023 Fun Run!
Royal Parks Half Marathon. 8 October 2023
Join an inspirational team of fundraisers and do something extraordinary to help find a cure for Angelman syndrome.
About the run
Take part in this spectacular half marathon on closed roads through four beautiful Royal Parks on 8 October. The 13.1 mile course will take you past world-famous landmarks, and as part of the FAST UK team, you’ll enjoy fantastic support from our members along the route.
Your charity place
Secure your place on the start line by contacting us today. We have a fundraising target of £1500.
Why Team FAST UK?
You’ll be running as part of an inspiring team of fellow fundraisers, who share their reasons for running with FAST UK. We believe that it’s possible to cure Angelman syndrome and we need to bring the day of finding the cure forward. Your participation in raising funds for FAST UK is crucial to making it happen.
Want to run with? Join us and receive:
- a complimentary professional running vest
- cheering along the route by FAST UK members
- the satisfaction of knowing you’re bringing the day when Angelman syndrome is curable forward
For more information on the race and a look at the scenic route, please visit the Royal Parks Half Marathon website.
Use hashtags #RunforAScure and #CureAngelmanNow to share your training journey and raise awareness.
You can fundraise for this run as a part of the FAST UK CAN Campaign using JustGiving page here.