FAST UK continue to fund the much needed Natural History study (NHS) with Oxford University to facilitate clinical trials in the UK.
A natural history study’s main use is to support the development of safe and effective drugs and biological products for rare diseases. A natural history study collects information about the natural history of a disease in the absence of an intervention, from the disease’s onset until either its resolution or the individual’s death. Although knowledge of a disease’s natural history can benefit drug development for many disorders and conditions, natural history information is not usually available or is incomplete for most rare diseases; therefore, natural history information is particularly needed for these diseases hence the need for the NHS in the UK.
In the United States, research funded by FAST has identified a way to turn on a gene that is normally turned off in the brain. FAST US took this discovery and started its own biotechnology company to move this technology from the laboratory into human clinical trials. Trials were initiated in 2020 and early preliminary results suggest this therapeutic may effectively treat the symptoms of Angelman syndrome, and trials are underway in the UK already but funding is necessary for these trials to continue so please help today by joining FAST’s CAN Campaign or donating today.
At FAST UK we encourage anyone young, older, old, fit, un-fit, able or less able to take part in challenges throughout the country, and the world, if appropriate and possible. We will support you in the process from start to finish, as well as helping to find and fund places (within a certain limit) if it is possible.
If you are looking for a challenge, small or big, please contact us directly at email@example.com and we will do our utmost to help. A good starting point is to look at https://findarace.com/ and contact us and we can go from there.
Challenge yourself, raise money and support FAST UK and Angelman Syndrome by signing up today.
The FAST UK Cure Angelman Now (CAN) campaign is here and with your help, together we CAN cure Angelman Syndrome. Please join us today by creating a fundraiser in the 2023 CAN Fundraising Campaign.
CAN is a fundraising campaign to show support for Angelman syndrome research and to raise money for FAST UK, a non-profit organisation that provides funding for Angelman syndrome research in the UK.
1. Click HERE to create a fundraising activity that will be linked to our Just Giving FAST UK CAN Campaign page.
2. Set your fundraising goal high. We encourage everyone to strive for a goal of at least £1,000. Just go for it. We know you can do it!
Please take a look at our Assets page where you will find high-resolution images, including FAST CAN 2023 Campaign Banner, suitable for printing in great quality.
To try and encourage you further, we are offering some wonderful prizes which can be awarded to anyone taking part.
The Fundraising Campaign is a challenge in which the entrant that raises the highest amount for FAST UK will receive the 1st Prize, as described below. There will be a further wild card prize in which one entrant will be randomly selected to receive a prize, as described below. A total of 2 prizes will be awarded. All entrants can request to receive a FAST UK water bottle.
1st Prize: 2 Economy flights to Miami, 2 Gala tickets and 3 nights stay at the Diplomat Beach Resort Miami, Florida.
Wild card prize: 2 Economy flights to Miami and £350 spending money.
If either winner (1st prize or wild card prize) has no affiliation to someone with Angelman Syndrome and would prefer not to attend the Gala, the prizes on offer are: 1st prize, Economy flights to Miami or a US city of your choice for 2 people and £750 spending money. Wild card prize: Economy flights to Miami or a US city of your choice for 2 people and £350 spending money.
So please think today how you can really help FAST UK reach their goal of doubling what was raised last year. We know you CAN do it.
- Daley Young
- Raised To Date